Our KY Chapter is so excited to share all the news about “Life According to Sam” with you. “Life” is an HBO documentary about Sam Berns, the 16 year old son of Dr. Sam Berns and Dr. Leslie Gordon, the co-founders of the Progeria Research Foundation.
** Sam and his family appeared on the Katie Show on Monday, October 15th. Click here for a link to the show **
** LIFE premiers on HBO on Monday, October 21 at 9:00 p.m. Click here for more information about the film **
** Robert Kraft, owner of the New England Patriots, is pledging up to $500,000 to PRF if they can raise the same amount of money, up until Sam’s 17th birthday — OCTOBER 23RD. What an incredible opportunity for PRF to raise $1 million dollars for the clinical drug trial. Click here to read more about this generous gift and to donate….PLEASE HURRY! **
** Our KY Chapter is having a showing of LIFE for those people unable to view the show on October 21st on HBO. Here are the details **
Saturday, November 2nd, 6:30 p.m.
South Elkhorn Christian Church, Harrodsburg Road, Lexington, KY
Please RSVP to859-223-1433 or email firstname.lastname@example.org
Hope to see you there!
We want to give a huge thank you to everyone who donates their time and money to PRF. Your donations help to further research and fund the drug trials. However, there are a couple of people that we want to give a special THANK YOU for wanting to help our family. We know in our hearts that you are our ANGELS….you know what you do…and we thank you and love you so much!
Ed & Vicky Hasty
Kirk & Amy Carman (KC’s Two Car Bar)
David & Lisa Messer
The 3rd Annual Race Against Time was incredible! With around 100 participants, the Run/Walk offered a great morning supporting Zach and raised $10,500 for the Progeria Research Foundation! Great job! We wish to thank everyone who attended, everyone who made donations, the sponsors, and the incredible people who donated items for the awesome silent auction. Great job everyone!
There were several news stories that aired to publicize the event.
I watch him grow, not so much physically, but in leaps and bounds mentally, and I swell up with pride. Our boy is thriving, he is happy, he is living life. It took his new 1st grade teacher two days to figure him out …. “Everything with Zach is a party.” And it’s true, if there’s not a party, he makes one. He turns it into one. The simplest things. The most basic tasks or chores. The goofiest America’s Funniest Home Videos on TV become an all-out laugh fest. He is living.
I look at this picture with pride. I’m so proud of my boy…so proud that he goes to public school and endures each day walking around with kids sometimes a foot taller than he is. I’m proud that he has friends, good friends that have his back and would take up for him in a minute. I’m proud that he makes people laugh. I’m proud that he makes people cry. I’m proud that he loves me so much. But I have to be honest and also say that I look at this picture with fear. Will Zach grow up to be a Rock Star, a police officer, or a business man? Will he be able to have a job at all? Will he always be able to find the party?
You may be wondering…how does she get by? How does she keep a smile on her face? Three things come to mind. I keep the faith. God will take care of us, and he will take care of Zach. I have hope. It’s all I got and it’s all I need to get me back on track. Remember, we are finding the cure! And last, I love him like crazy. This is the easiest one. Even God said “the greatest of these is love”. That’s all I need to get me through.
So here’s to 1st grade…and making it a party!
Thank you to all of our many friends who made the 3rd Annual Ride for Progeria possible. Although the rain put a damper on our registration, we raised more money this year with less riders! Thank you to the awesome Bragg family, our too-cool friends with all the various Widow Sons Masonic Riders associations, Justin Moses, Positively Java, Man O War Harley Davidson, and EVERYONE else who showed up or donated items for the auction. We raised $4,567.09 for PRF this year! YES! We are incredibly blessed with friends and family who support PRF and love Zach so much!